Raising the rare voice
We are the respected voice for rare disorders in New Zealand.
We advocate for access to world class and world leading health, disability, education and other services for the 300,000 New Zealanders living with a rare disorder.
Rare News
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Health NZ execs grilled by MPs on Strategy implementation
6 Dec 2024
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Connecting rare disorders researchers through new network
29 Nov 2024
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Calling for nominations for RDNZ 25th anniversary awards
27 Nov 2024
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RDNZ discusses new attendance rules with officials
19 Nov 2024
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Inaugural Clinical Advisory Panel announced
15 Nov 2024
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Te Whatu Ora reset standing in the way of people with rare disorders getting the care they need
24 Oct 2024
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Pharmac’s early call for applications for rare disorder medicines welcomed
22 Oct 2024
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RDNZ seeks clarification on new attendance rules
7 Oct 2024
Rare Stories
Flynn's story
Our son Flynn was around two years old when we realised he had sensory and behaviour issues. He was diagnosed at about four with autism and then at six with ADHD. Flynn had food issues, his hunger was insatiable and he would eat non-edible items. He could be violent towards others without realising his strength as he was a big boy. He also had febrile convulsions from six weeks old and later had…
Meet some of the 300,000 people living with a rare disorder in New Zealand. If you would like to share your personal story tell us here.
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